I have VWD and have a lot of petechiae and fatigue. My spots range in size but they start out small and over time get larger. They are a purplish red color and I have them all over. I am 64 so I've had the spontaneous small bleeds and bruising for a long long time.

Hi Monica, I have Von Willebrands and some days I feel like I got hit by a bus and other days I have tons of energy. I also get those red dots. I think they are broken capiaries and signify interaal bleeding I only have 5 scattered on my trunk and they are always the same but my doctor said if they get worse than you need to get your levels tested . As for your son and school, you can request a medical 504 assessment and he can be eligible for accomodations like extended test times home tutoring if he is out for more than 5 for the disease late start in the morning not penalized for being absent for illness etc. just get a letter from the doctor saying his symptoms I have one for my daughters migraines. They should give you a caseworker so they can coordinate his missed work. Good luck!

I get strange red dots on my legs from time to time and I am always tired. I also have trouble sleeping. Most people don't understand vwd so I just tell them I don't sleep well.

I haven’t had the red dots since I was a kid. I’d get them on my ankles and i think it was from not keeping them elevated when I was having a bleed.

You may want to ask the Dr to check your platelet count