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My son 21 has no insurance and disability keeps denying him and so does Medicaid . we can't afford factor 8 for his bleeds . he has to drive an hour or more to another state just to get a factor 8 shot and that's an emergency room visit and Bill every time. Can we get help with getting factor 8 for him to have at home . please help me
Call the manufacturer they can help.
Why are they charging so much. Is it just because of the dental work or because your factor 8 deficient?
Not that I’m aware of
I have severe arthritis in both of my ankles. I use, Celebrex and an AFO brace.
I have severe arthritis in my knee because of repeated bleeds and had a could have radioactive synovectomys which have just finished my knee off. On celecoxib, txa and 2000 daily benefix
For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?
I am always tired and have petechiae in random places, not to many, they are on my chest and legs. Should I worry?
Yes, I’m severe fXI and my fatigue is a daily thing but it’s made worse from the cold. Best thing is to take more time for yourself and caffeine aha
I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight
Thanks !!
Do you ever push yourself through a bleeding episode without infusing I do and it's actually not that bad once the bleeding has calmed down and gone away I hate needles is there any advise for this
I would strongly discourage trying to push through a bleed and not infuse. Especially if it is in any major joint. You will definitely pay for it when you get older and you develop severe arthritis… read more
