hemophilia b prognosis what is the life expectancy and hemophilia | MyHemophiliaTeam

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Top 10 Search Results for "hemophilia b prognosis what is the life expectancy"

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Health Insurance
A MyHemophiliaTeam Member asked a question 💭

I live in Michigan, and we have Childrens Special Health, that covers hospitalizations, factor, and supplies, with no cap.
I'm looking to moving somewhere possibly warmer in the future, and I'm curious about coverage in other states. I'm a very special, and severe case, and want to be sure I'll get the coverage that would keep me healthy.
If you care to share, that would be amazing.

A MyHemophiliaTeam Member

I don't have hep-c but know of some people that does or did. They now have treatment for it.

Advice About Hemaphila C
A MyHemophiliaTeam Member asked a question 💭

How is Hemaphila C different from other hemophilia conditions

Elbow Pain - Older Haemophiliacs
A MyHemophiliaTeam Member asked a question 💭

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

A MyHemophiliaTeam Member

I have pins and needles in my small finger as well as the next. Xrays shows that I have a nerve caught in the elbow joint. Got used to it after an few years. Now I have Carpal tunnel syndrome as well.

Anyone Know If A Child With Hemophilia Has Ever Been Approved For SSI Because Of It?? Any Lawyers That Would Represent At Hearing In State?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Yes it took me 6 months from the day I applied for SSI & he qualified..having vonwillebrand.he has a life expectancy..

In Need Of Oral Surgeon In NYC
A MyHemophiliaTeam Member asked a question 💭

Hello. I’m living in NYC can not find an oral surgeon that will do work on a hemophiliac. Any help please.

A MyHemophiliaTeam Member

I like Dr. Mahjoubi. She did my wisdom teeth op

Factor 9 Replacement ?!
A MyHemophiliaTeam Member asked a question 💭

What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!

A MyHemophiliaTeam Member

You can reach out to “save one life” or a manufacturer to get factor

How Do I Discourage My 17 Yro. Severe Hemo. A Son, Not To Buy A Motorcycle?
A MyHemophiliaTeam Member asked a question 💭

.Hi, My 17 yro. Severe A son, is determined to buy a motorcycle. He has written and explained a 3 page report to me and his dad the reasons why he should be allowed to get a motorcycle. To me, this just sounds like the craziest idea in the world.--No exceptions!---A no brainer. But trying to convince my son is a totally different argument
This would not happen right away, but probably within the next 6 to 8 mos
I am searching for help from the "older" more experienced people,-- who may… read more

A MyHemophiliaTeam Member

I just joined this sight and I saw your post from over 2 years ago. Having had motorcycles since I was 10 made me curious of your outcome. I am Severe A also. Hope all is well. Glenn

My Son Is 35 And Has Factor 9, Can Someone Help Find Factor For Him?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm also Factor 9 hemophilia B I live in central Canada I take Rebinyn.

Insurance Problems
A MyHemophiliaTeam Member asked a question 💭

Well this is a really long story but I am going to make it short. I have Blue Cross Blue Shield of NC they will not cover my Factor for me to have on hand witch is kinda a big deal. Because I am having to miss work to go get my infusion. They are wanting me to pay a stupid amount of money every month to have it at home at witch point I could buy a new Ford F150 every month lol. But does any one have any suggestions how not to get the run around with them or what I should do

A MyHemophiliaTeam Member

Check with your local Hemophilia Chapter for help with insurance issues.

Is There Anyone That Would Recommend A Supplement Insurance For Copay And Etc.?
A MyHemophiliaTeam Member asked a question 💭

Looking for help with copay and supplement insurance similar to Aflac or etc.? Anyone have any suggestions out there? Thanks

A MyHemophiliaTeam Member

I believe there is a hemophiliac organization in all states that can help with payments and other things